On March 23, direct-to-consumer genetic testing company 23andMe announced it had filed for bankruptcy. The move came after the company, which generated genetic profiles based on saliva samples from customers, faced financial woes and a data breach in recent years.
California Attorney General Rob Bonta and others have urged users to delete their data in the wake of the bankruptcy filing over concerns about what may happen to consumers’ data. However, Northwestern genetic justice expert Sara Huston said she doesn’t share the same data-security concerns.
“I don’t think the highest bidder is going to be a foreign government or law enforcement, I think it’s going to be big pharma, so I say, so what if they get these data?” said Huston, a research assistant professor of pediatrics at Northwestern University Feinberg School of Medicine whose research focuses on policy options for genetic testing applications in medicine and law enforcement and how genetic technologies affect individuals.